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Library · Books by Jeff A. Parke · Digital PDF · Payhip Only

BOOKS BY
JEFF PARKE

Every title authored by Jeff A. Parke — three-time kidney transplant recipient, clinical research professional, and Executive Director of Cold Ischemia Foundation. All digital editions available exclusively through the Payhip store. Instant PDF delivery. No subscription required.

Available exclusively on Payhip. Jeff's titles are digital PDF editions sold directly through the Cold Ischemia Foundation Payhip store. They are not available on Amazon. Proceeds support independent care partner advocacy with zero pharmaceutical conflict of interest.

Jeff A. Parke · Digital PDF · Payhip Store

Available now — Payhip only

Instant PDF download. Direct from the Foundation store. Every purchase supports independent care partner advocacy with no corporate or pharmaceutical funding.

The Unseen Half by Jeff A. Parke
Care Partner Guide · PDF · 70 pages
The Unseen Half: A Care Partner's Complete Guide to Chronic Illness, Caregiver Burnout, and Sustainable Advocacy
Jeff A. Parke · Cold Ischemia Foundation

The transplant system required you. It trained you for nothing, paid you nothing, and called it love. Seventy pages of evidence-based, Lean Six Sigma-structured guidance covering financial reality, emotional terrain, legal rights, and the legislative demands 55 million care partners are owed.

Kidney Warriors by Jeff A. Parke
Mental Health Navigation · PDF
Kidney Warriors: The Complete Mental Health Navigation Guide
Jeff A. Parke · Cold Ischemia Foundation

Empowerment, advocacy, and real-world tools for living with chronic kidney disease. Validated assessments, CBT strategies, advocacy scripts, and trackers — for patients and families navigating the mental health toll the healthcare system documents and refuses to fund.

Stand Tall Anyway by Jeff A. Parke
Social Anxiety · CKD · PDF
Stand Tall Anyway: Reducing Social Anxiety Disorder in the Context of Chronic Kidney Disease
Jeff A. Parke · Cold Ischemia Foundation

Living with CKD is hard enough. Adding social anxiety disorder makes every clinic visit a performance. CBT, ACT, and real-world coping tools — scripts for speaking up in medical settings without fear of being labeled difficult. Evidence-based. Plain language. Patient perspective.

Toolkit for Blacklisted Dialysis Patients by Jeff A. Parke
Patient Rights · Dialysis · PDF
Toolkit for Blacklisted Dialysis Patients: Empowering Advocacy and Rights Awareness
Jeff A. Parke · Via Vera Dialysis Reform Collaborative

The only guide built specifically for patients facing illegal facility discharge. Crisis timelines, complaint templates, ESRD Network contacts, mediation strategies, and mental health tools. Your rights. The clock. The agencies. All in one place.

THE RENAL CARE PARTNER'S PLAYBOOK
Home Dialysis Strategy · PDF
The Renal Care Partner's Playbook
Jeff A. Parke · Cold Ischemia Foundation

Strategic blueprint for home dialysis: step-by-step logistics, emergency response templates, scripted provider communication, and burnout management systems. Built for the care partner who became the scheduler, nurse, emotional anchor, and equipment technician all at once.

All titles above are authored by Jeff A. Parke and sold exclusively through the Cold Ischemia Foundation Payhip store. Digital PDF format. They are not available on Amazon or any other retail platform. Proceeds support independent care partner advocacy with zero pharmaceutical or corporate funding.

Curated Reading · Recommended by the Foundation · Amazon

Books we recommend.
From other authors.

These are books and tools we genuinely recommend for care partners and chronic illness families — written by other authors. Purchases through these links use Associates ID coldischemia1-20 and support the Foundation at no additional cost to you.

Caregiving
Caregiving · Print & Kindle
Already Toast: Caregiving and Burnout in America
Kate Washington

The definitive account of care partner burnout in America. Unpaid labor. Structural failure. Required reading for anyone trying to understand the system that requires so much and compensates so little.

Care Partner · Print & Kindle
When Someone You Love Has a Chronic Illness
Tamara McClintock Greenberg PsyD

Written for the care partner — not the patient. Covers relationship strain, grief, and how to hold your own life together while managing someone else's illness.

Caregiving · Print & Kindle
Stand By Me: A Guide to Navigating Modern Meaningful Caregiving
Allison Applebaum PhD

Clinical psychologist tackles medical navigation, advance planning, and relationship dynamics through a caregiving lens. Practical and grounded in real cases.

Caregiving · Print & Kindle
The Conscious Caregiver
Linda Abbit

Practical techniques for managing stress, avoiding burnout, and staying present without losing yourself. Direct, actionable, not preachy.

Self-Care · Print & Kindle
Self-Care for Caregivers: A Practical Guide
Susanne White

Voted best overall by multiple caregiver resource lists. Direct, actionable, and not preachy. For care partners who need practical strategies — not more wellness affirmations.

Caregiving Reference · Print & Kindle
The 36-Hour Day: A Family Guide to Caring for People with Dementia
Nancy L. Mace

Considered the bible of family caregiving. Comprehensive and practical from daily tasks to emotional toll. Even outside dementia care, the framework applies broadly to all long-term care partners.

Caregiver Skills · Print & Kindle
The Caregiver Helpbook: Powerful Tools for Caregiving
Vicki Schmall

Skill-based approach to caregiving. Covers problem-solving, communication, and self-renewal for long-term care partners navigating complex systems.

Memoir · Caregiving · Print & Kindle
Can't We Talk About Something More Pleasant?
Roz Chast

Graphic memoir by a New Yorker cartoonist on caring for aging parents. Honest, funny, and brutally real. A necessary counterweight to clinical caregiving literature.

Caregiving · Print & Kindle
The Accidental Caregiver
Kimberly Fraser

Practical advice on navigating a confusing healthcare system, handling constant demands, and preventing your own burnout when you never planned to be in this role.

Caregiving Memoir · Print & Kindle
Choosing Joy
Helene Berger

First-person care partner account from a woman who became a caregiver to her husband of 50 years. Methodologies and hard-won lessons from sustained long-term caregiving.

Chronic Illness
Chronic Illness · Print & Kindle
Being Mortal: Medicine and What Matters in the End
Atul Gawande

Surgeon and public health expert on when medicine stops helping and what quality of life actually means. Essential for care partners navigating end-stage decisions.

Chronic Illness · Print & Kindle
How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers
Toni Bernhard

One of the most respected chronic illness books available. Explicitly addresses care partners alongside patients. Practical tools grounded in acceptance and commitment.

Chronic Illness · Print & Kindle
You're Sick; They're Not: Relationship Help for People with Chronic Illness
Rosalind Joffe

Directly addresses the relational fractures that chronic illness causes between patients and care partners. Practical, honest, and grounded in clinical reality.

Healthcare System · Print & Kindle
The Patient Priority: Solving Healthcare's Value Crisis
The Patient Priority Team

Exposes how the healthcare system deprioritizes patient outcomes — essential context for any care partner navigating a system designed around billing, not healing.

Chronic Illness Support · Print & Kindle
Sick and Tired: Empathy, Encouragement, and Practical Help
Gary Roe

Targeted at care partners and supporters navigating the emotional complexity of loving someone with chronic illness. Grounded and non-clinical in a way that reaches people clinical literature cannot.

Kidney & Transplant
Kidney · Print & Kindle
Thriving with Kidney Disease
Walter A. Hunt

Written by a transplant recipient and researcher. Includes dedicated sections on caregiver coping and post-transplant life. One of the few kidney books that takes the care partner's perspective seriously.

CKD · Print & Kindle
Stopping Kidney Disease
Lee Hull

500+ pages of evidence-based CKD management. Covers dialysis, transplant, and the care partner role in treatment decisions. One of the most comprehensive patient-facing CKD references available.

Organization & Tracking Tools
Medical Organizer · Tool
My Care Case Medical Records Organizer
My Care Case

Full binder system for every appointment. Holds physician pages, insurance records, lab results, medication logs, and test CDs. Built by a caregiver who understood what was actually needed.

Health Planner · Tool
Chronic Illness Health Organizer: 6-Month Planner
Nanpaw's Adventures Inc.

Designed explicitly for care partners and patients together. Tracks symptoms, medications, appointments, and energy levels without pressure or clinical intimidation.

Care Log · Tool
Caregiver Daily Log Book: Medication Checklist and Care Tracker
Cole Goodwin

Daily log format with vitals, medication, activities, alertness levels, and care notes. Useful for managing complex multi-medication regimens with a documented record.

Records Organizer · Tool
Medical Records Travel Wallet and Document Organizer
StoreSMART

Compact portable wallet for carrying insurance cards, living wills, medical summaries, and medication lists to every appointment. One of the simplest and most useful tools for care partners.

Medical Monitoring Devices
Blood Pressure · Medical Device
Omron Platinum Upper Arm Blood Pressure Monitor
Omron

Clinically validated upper arm BP monitor. Post-transplant patients and their care partners need consistent, reliable readings at home. This is the device nephrologists recommend.

Pulse Oximeter · Medical Device
Zacurate Pro Series Fingertip Pulse Oximeter
Zacurate

Fast, accurate SpO2 and pulse rate readings. Essential for immunocompromised post-transplant patients who need to catch respiratory changes early, before they become emergencies.

Thermometer · Medical Device
iProven Digital Oral Thermometer
iProven

Fast and accurate. Post-transplant patients on immunosuppressants need to catch fever early — care partners need a thermometer they can trust in the middle of the night.

Pill Organizer · Medication Tool
Apex 7-Day Weekly Pill Organizer Extra Large
Apex

Large compartment, twice-daily pill organizer. Transplant and CKD regimens involve complex multi-medication schedules. This handles them without confusion.

Medication Security · Tool
Master Lock Portable Lock Box for Medications
Master Lock

Secure portable lock box for controlled substance storage. Care partners managing complex medication access need this for safety and accountability in multi-person households.

Emergency ID · Medical Tool
American Medical ID Stainless Steel Medical Alert Bracelet
American Medical ID

Engraved medical ID for transplant patients listing conditions, medications, and emergency contacts. Care partners cannot be everywhere — this bracelet speaks when you cannot.

Cold Ischemia Foundation participates in the Amazon Associates Program (ID: coldischemia1-20). Purchases through these links generate a small commission at no cost to you, supporting independent advocacy operations. We are not paid to recommend any title. Books and tools listed here are genuine recommendations — not paid placements. Jeff A. Parke's own books are NOT available on Amazon and are sold exclusively through Payhip.