Every title authored by Jeff A. Parke — three-time kidney transplant recipient, clinical research professional, and Executive Director of Cold Ischemia Foundation. All digital editions available exclusively through the Payhip store. Instant PDF delivery. No subscription required.
Available exclusively on Payhip. Jeff's titles are digital PDF editions sold directly through the Cold Ischemia Foundation Payhip store. They are not available on Amazon. Proceeds support independent care partner advocacy with zero pharmaceutical conflict of interest.
Instant PDF download. Direct from the Foundation store. Every purchase supports independent care partner advocacy with no corporate or pharmaceutical funding.
The transplant system required you. It trained you for nothing, paid you nothing, and called it love. Seventy pages of evidence-based, Lean Six Sigma-structured guidance covering financial reality, emotional terrain, legal rights, and the legislative demands 55 million care partners are owed.
Empowerment, advocacy, and real-world tools for living with chronic kidney disease. Validated assessments, CBT strategies, advocacy scripts, and trackers — for patients and families navigating the mental health toll the healthcare system documents and refuses to fund.
Living with CKD is hard enough. Adding social anxiety disorder makes every clinic visit a performance. CBT, ACT, and real-world coping tools — scripts for speaking up in medical settings without fear of being labeled difficult. Evidence-based. Plain language. Patient perspective.
The only guide built specifically for patients facing illegal facility discharge. Crisis timelines, complaint templates, ESRD Network contacts, mediation strategies, and mental health tools. Your rights. The clock. The agencies. All in one place.
Strategic blueprint for home dialysis: step-by-step logistics, emergency response templates, scripted provider communication, and burnout management systems. Built for the care partner who became the scheduler, nurse, emotional anchor, and equipment technician all at once.
All titles above are authored by Jeff A. Parke and sold exclusively through the Cold Ischemia Foundation Payhip store. Digital PDF format. They are not available on Amazon or any other retail platform. Proceeds support independent care partner advocacy with zero pharmaceutical or corporate funding.
These are books and tools we genuinely recommend for care partners and chronic illness families — written by other authors. Purchases through these links use Associates ID coldischemia1-20 and support the Foundation at no additional cost to you.
The definitive account of care partner burnout in America. Unpaid labor. Structural failure. Required reading for anyone trying to understand the system that requires so much and compensates so little.
Written for the care partner — not the patient. Covers relationship strain, grief, and how to hold your own life together while managing someone else's illness.
Clinical psychologist tackles medical navigation, advance planning, and relationship dynamics through a caregiving lens. Practical and grounded in real cases.
Practical techniques for managing stress, avoiding burnout, and staying present without losing yourself. Direct, actionable, not preachy.
Voted best overall by multiple caregiver resource lists. Direct, actionable, and not preachy. For care partners who need practical strategies — not more wellness affirmations.
Considered the bible of family caregiving. Comprehensive and practical from daily tasks to emotional toll. Even outside dementia care, the framework applies broadly to all long-term care partners.
Skill-based approach to caregiving. Covers problem-solving, communication, and self-renewal for long-term care partners navigating complex systems.
Graphic memoir by a New Yorker cartoonist on caring for aging parents. Honest, funny, and brutally real. A necessary counterweight to clinical caregiving literature.
Practical advice on navigating a confusing healthcare system, handling constant demands, and preventing your own burnout when you never planned to be in this role.
First-person care partner account from a woman who became a caregiver to her husband of 50 years. Methodologies and hard-won lessons from sustained long-term caregiving.
Surgeon and public health expert on when medicine stops helping and what quality of life actually means. Essential for care partners navigating end-stage decisions.
One of the most respected chronic illness books available. Explicitly addresses care partners alongside patients. Practical tools grounded in acceptance and commitment.
Directly addresses the relational fractures that chronic illness causes between patients and care partners. Practical, honest, and grounded in clinical reality.
Exposes how the healthcare system deprioritizes patient outcomes — essential context for any care partner navigating a system designed around billing, not healing.
Targeted at care partners and supporters navigating the emotional complexity of loving someone with chronic illness. Grounded and non-clinical in a way that reaches people clinical literature cannot.
Written by a transplant recipient and researcher. Includes dedicated sections on caregiver coping and post-transplant life. One of the few kidney books that takes the care partner's perspective seriously.
500+ pages of evidence-based CKD management. Covers dialysis, transplant, and the care partner role in treatment decisions. One of the most comprehensive patient-facing CKD references available.
Full binder system for every appointment. Holds physician pages, insurance records, lab results, medication logs, and test CDs. Built by a caregiver who understood what was actually needed.
Designed explicitly for care partners and patients together. Tracks symptoms, medications, appointments, and energy levels without pressure or clinical intimidation.
Daily log format with vitals, medication, activities, alertness levels, and care notes. Useful for managing complex multi-medication regimens with a documented record.
Compact portable wallet for carrying insurance cards, living wills, medical summaries, and medication lists to every appointment. One of the simplest and most useful tools for care partners.
Clinically validated upper arm BP monitor. Post-transplant patients and their care partners need consistent, reliable readings at home. This is the device nephrologists recommend.
Fast, accurate SpO2 and pulse rate readings. Essential for immunocompromised post-transplant patients who need to catch respiratory changes early, before they become emergencies.
Fast and accurate. Post-transplant patients on immunosuppressants need to catch fever early — care partners need a thermometer they can trust in the middle of the night.
Large compartment, twice-daily pill organizer. Transplant and CKD regimens involve complex multi-medication schedules. This handles them without confusion.
Secure portable lock box for controlled substance storage. Care partners managing complex medication access need this for safety and accountability in multi-person households.
Engraved medical ID for transplant patients listing conditions, medications, and emergency contacts. Care partners cannot be everywhere — this bracelet speaks when you cannot.
Cold Ischemia Foundation participates in the Amazon Associates Program (ID: coldischemia1-20). Purchases through these links generate a small commission at no cost to you, supporting independent advocacy operations. We are not paid to recommend any title. Books and tools listed here are genuine recommendations — not paid placements. Jeff A. Parke's own books are NOT available on Amazon and are sold exclusively through Payhip.