Most people find this page in a moment of crisis — a discharge notice, a denied claim, a transplant committee decision with no explanation. You do not have time to read three separate manuals while the clock is running. So we built one download with everything.
This bundle contains every free resource Cold Ischemia Foundation has published: the complete Patient & Care Partner Advocacy Toolkit, the Regulatory Action Toolkit, and The First 24 Hours crisis guide — 34 pages, 29 pages, and 14 pages of federally-cited rights, scripts, and complaint templates, delivered to your inbox in minutes. No pharmaceutical funding. No softened language. No paywall.
The foundation of every advocacy action: a Lean Six Sigma breakdown of why the kidney care system fails patients, a full table of your federally enforceable rights with CFR citations, the seven most common institutional violations with documented response protocols, four ready-to-send letter templates, and a complete tiered escalation playbook from facility-level grievance to Congressional oversight.
For when documentation needs to become action: the Red Flag Violation Matrix mapping clinical, patient-rights, and governance-level violations to exact regulatory citations; FOIA request templates to obtain a facility's full survey history; the 7-tier complaint escalation ladder with letter templates for each tier; a witness statement protocol; whistleblower protections; and a complete federal agency contact directory.
For an active crisis right now: what to do in the first two hours after a discharge notice, the exact agencies to contact in order with phone numbers, a word-for-word dispute script, how to request free formal mediation through your ESRD Network, and a tactical framework for staying functional enough to execute the plan while everything feels like it's falling apart.
Why all three, together? Crises don't arrive labeled. A discharge notice is also a rights violation. A rights violation is also a regulatory complaint waiting to be filed. These three guides were written to work as one system — read them once, and keep them ready for whichever moment finds you.
Jeff Parke is a three-time kidney transplant recipient and founder of the Cold Ischemia Foundation, working alongside his wife and care partner Marie Parke, RN. Together they built CIF to provide the tools, guides, and advocacy infrastructure that the system was never going to build for patients and care partners itself. Every guide in this bundle exists because someone needed it and it did not exist. Now it does.